6001 Executive Blvd
NINDS invites all interested stakeholders in the neurological research enterprise to attend
INSPIRE - Improving Neurological Subject (and Provider) Participation In the Research Enterprise -
The Mission of NINDS is to reduce the burden of neurological disease in the public, a mission that requires clinical trials and studies that are completed in a reasonable amount of time and with an adequately powered sample to answer the important questions facing us.
The Institute of Medicine has identified lackluster recruitment and retention to clinical trials as a major threat to the clinical research enterprise, a threat that should be addressed from many angles, including more patient-centric study design, improving awareness, advocacy and education to enhance and enlarge the clinical research workforce.
This is the first NIH/NINDS workshop to address a major concern in clinical trials in neurology: facilitation of adequate and efficient recruitment and retention through optimal study design, communication and recruitment strategizing and site management and administration.
This workshop brings together the expertise and experience of relevant stakeholders in the neurology clinical research enterprise, including study investigators, coordinators and project managers, data managers, statisticians, clinicians, advocates and patients, as well as NINDS program staff.
Have been successful at implementing different types of clinical studies in neurological disorders
Have led or participated in studies that have encountered difficulty recruiting and/or retaining study subjects
Have learned from their mistakes and successes and are willing to candidly share those experiences and lessons with others
Are skilled in the use of new tools and technologies or interested in learning more about them from those who have used them
Are open to engaging with all relevant stakeholders in the neurological research enterprise
Are interested in participating in the development of solutions to the challenges facing the neurology clinical research enterprise
Workshop attendees will leave the workshop inspired with tools, ideas and new ways of thinking about clinical research in neurology that can be immediately implemented in their daily work.