Registrant List (public)

The database produced 131 publicly listed registrant(s).
Only registrants who have indicated that their information may be made public are listed.
Name Organization City State Country
Adams, Amy NINDS, NIH Bethesda MD United States
Allegretta, Mark National Multiple Sclerosis Society New York NY United States
Anderson Brooks, Megan CRD Associates Washington DC United States
Balas, Calaneet The ALS Association Washington DC United States
Ballasiotes, Mary Kay International Alliance for Pediatric Stroke Charlotte NC United States
Bartek, Ronald FARA Annandale VA United States
Beer, Kimberly Christopher and Dana Reeve Foundation Washington DC United States
Bell, Emily Bow Foundation Springfield VA United States
Bennewith, Alexandra United Spinal Association Washington DC United States
Bittmann, Moria NIH Bethesda MD United States
Blackman, James Cerebral Palsy Alliance Research Foundation Alexandria VA United States
Bliss, Geraldine Phelan-McDermid Syndrome Foundation Houston TX United States
Bosetti, Francesca NINDS Rockville MD United States
Boshoff, Chris NINDS Bethesda MD United States
Breeden, Andrew NINDS Bethesda MD United States
Brown, Lawrence Children's Hospital of Philadelphia Philadelphia PA United States
Bruijn, Lucie ALS Association Washington DC United States
Burnett, Barrington Uniformed Services University Bethesda MD United States
Calabrese, Ryan NINDS N Bethesda MD United States
Carifi, Emily NINDS Rockville MD United States
Chambers, Leslie American Parkinson Disease Association Staten Island NY United States
Corley, Jessica National Institutes of Health Bethesda MD United States
Corriveau, Rod NINDS North Bethesda MD United States
Crooks, Joanna American Epilepsy Society Chicago IL United States
Csimma, Cristina Csimma LLC Lincoln MA United States
Dacks, Penny American Epilepsy Society Chicago IL United States
Davis, Carolyn National Ataxia Foundation Vienna VA United States
Demetriades, Joan One Mind Seattle WA United States
Dickinson, Susan AFTD Radnor PA United States
Dishman, Eric NIH ROCKVILLE MD United States
Duenas, Martin Leidos Frederick MD United States
Dumanis, Sonya Epilepsy Foundation Landover MD United States
Dunlap, Lauren Advocacy&Awareness for Immune DisordersAssociation Charlotte NC United States
Dunn, Billy FDA Silver Spring MD United States
Dupre, Kristin NIH/NINDS Bethesda MD United States
Emr, Marian NINDS Bethesda MD United States
Falcón-Morales, Edgardo NINDS Rockville MD United States
Fertig, Stephanie NINDS/NIH Bethesda MD United States
Fink, Chris Alliance for Patient Access Washington DC United States
Fischbeck, Kurt NINDS Bethesda MD United States
Frazier, Margie Batten Disease Support and Research Association Columbus OH United States
Fruchterman, Emily Research!America Arlington VA United States
Fureman, Brandy Epilepsy Foundation Landover MD United States
Furlong, Patricia Parent Project Muscular Dystrophy Middletown OH United States
Gladman, Jordan NINDS/NIH Rockville MD United States
Goglas II , Philip Dystonia Advocacy Network/GBS|CIDP Foundation Washington DC United States
Gormley, Maureen NINDS Bethesda MD United States
Grabenstatter, Heidi Neurology Patient Initiative Estes Park CO United States
Gray, Diana Hydrocephalus Association Bethesda MD United States
Gubitz, Amelie NIH, NINDS Bethesda MD United States
Hartman, Adam NINDS Rockville MD United States
Hecker, JayEtta Wishes For Elliott Washington DC United States
Hieshetter, Janet DMRF Chicago IL United States
Ho, Calvin Tuberous Sclerosis Alliance Silver Spring MD United States
Hobson, Donald The PMD Foundation Newark DE United States
Hobson, Grace Nemours Wilmington DE United States
Jakeman, Lyn NIH/NINDS Rockville MD United States
Jeon, Sophia NINDS Bethesda MD United States
Jett, David NIH/NINDS Rockville MD United States
Johnson, Nicholas University of Utah Salt Lake City UT United States
Kaminsky, Steven Rettsyndrome.org N. Bethesda MD United States
Keyser, Timothy United Spinal Association Arlington VA United States
Klein, Alexander CurePSP New York NY United States
Klein , Brian NINDS Rockville MD United States
Kleitman, Naomi Craig H. Neilsen Foundation Encino CA United States
Knight, Pamela Children's Tumor Foundation New York NY United States
Koenig, Jim NINDS Rockville MD United States
Koroshetz, Walter NIH Bethesda MD United States
Koschnitzky, Jenna Hydrocephalus Association Bethesda MD United States
Laeng, Pascal NINDS north bethesda MD United States
Langhals, Nick NIH Rockville MD United States
LaRocca, Nicholas National MS Society West Bath ME United States
Law, Kiely Kennedy Krieger Institute Baltimore MD United States
Louis, Claudia American Heart Association Washington DC United States
Mamounas, Laura NINDS North Bethesda MD United States
Maurer, Nancy cureCADASIL Association Plainsboro NJ United States
mazawey, Louis Foundation for Peripheral Neuropathy washington DC United States
McCrindle, Jen National Association of Epilepsy Centers Washington DC United States
McKay, Jenean National Ataxia Foundation Washington DC United States
Mendoza-Puccini, Carolina NIH Rockville MD United States
Meyer, Brittany Michael J. Fox Foundation for Parkinson's Research Washington DC United States
Miller, Daniel NINDS Bethesda MD United States
Miller, Ilene Hope for Hypothalamic Hamartomas Bethesda MD United States
Mohl, Stephanie American Stroke Association Washington DC United States
Morris, Jill NINDS Silver Spring MD United States
Newhouse, Barbara The ALS Association Washington DC United States
Nguyen, Beth Worldwide Syringomyelia & Chiari Task Force Lawrenceville GA United States
Oberman, Rebecca Mucolipidosis Type IV Foundation Atlanta GA United States
O'Boyle, Megan Phelan-McDermid Syndrome Foundation Arlington VA United States
Oshinsky, Michael NINDS Rockville MD United States
Owens, David NINDS Bethesda MD United States
Pariser, Anne NIH NCATS Bethesda MD United States
Parker, Doris PMD Foundation Salado TX United States
Pelleymounter, Mary Division of Translational Research Rockville MD United States
Poppe, Dorothy Chiari & Syringomyelia Foundation Staten Island NY United States
Raeissi , Shamsi NINDS Germantown MD United States
rangarajan, n. BPN/NINDS/NIH Rockville MD United States
Ransom, Jane American Brain Foundation Minneapolis MN United States
riddle, robert NINDS North Bethesda MD United States
Riker, Ellen National Association of Epilepsy Centers Washington DC United States
Ritter, Leslie National MS Society Washington DC United States
Roberds, Steven Tuberous Sclerosis Alliance Silver Spring MD United States
Rodmyre, Susan American Academy of Neurology Minneapolis MN United States
Rosbeck, Kari Tuberous Sclerosis Alliance Silver Spring MD United States
Rosen, Luke KIF1A Foundation New York NY United States
Rothblum-Oviatt, Cynthia A-T Children's Project Coconut Creek FL United States
Roy, Kevin Autism Speaks Washington DC United States
Sabbagh, Jonathan NINDS Rockville MD United States
SanInocencio, Christina LGS Foundation Bohemia NY United States
schaefer, alisa NINDS Rockville MD United States
Schneeman, Kristin FasterCures Washington DC United States
Schroeder, Karlin Parkinson's Foundation New York NY United States
Scott, Paul NINDS Bethesda MD United States
Seeger, Elisa Aidan Jack Seeger Foundation Brooklyn NY United States
Shaddox, Diann Diann Shaddox Foundation for Essential Tremor Aiken SC United States
Sharma , Shalini NINDS Rockville MD United States
Sieber, Beth-Anne NINDS/NIH Bethesda MD United States
Stewart, Randall NINDS Rockville MD United States
Strunnikova, Natalia NINDS Bethesda MD United States
Tamiz, Amir National Institute of Neurological Disorders and S Rockville MD United States
Thies, William Alzheimer's Association Chicago IL United States
Ullrich, Lauren NINDS Rockville MD United States
van der Willigen, Tessa Hydrocephalus Association Washington DC United States
Warren, Margo National Institutes of Health Bethesda MD United States
Wexler, Nancy Hereditary Disease Foundation New York NY United States
White, Samantha NINDS Bethesda MD United States
Williams, Tenasha Hydrocephalus Association Bethesda MD United States
Wong, Ling NINDS Bethesda MD United States
Wright, Clinton NINDS Rockville MD United States
Yobs, Debbie CJD Foundation Akron OH United States
Zhang, Ran NINDS Rockville MD United States
Version: 2.0.0